Showing posts with label Sjogren's Syndrome. Show all posts
Showing posts with label Sjogren's Syndrome. Show all posts

Saturday, October 27, 2012

what a pain and the end of "Boys"

   What a pain pain is! It slows us down. It makes some of us cranky. It keeps us from living a full life like everyone else. It requires a certain amount of attention. It hurts!

   Everyone wants to suggest ideas to help me feel better when my pain gets to a level that is just ridiculous. They mean well and it's well received. 

   The problem is that at this point I've tried everything already. I've done the warm (and hot) bath with epsom salts, with a bath soak for achy bodies, with just water.

   I've tried treating myself to ice cream and other delicious snacks, and although I still hurt I am well fed and very clean. I take every suggestion with love and graciousness with which it was intended. 

   Just by having the love around should help with the pain, even slightly, especially if we think of those women who have no one to help them through these terrible diseases. I'd rather have too many loving suggestions than none at all. 

   I also try to ease my pain not be a pain. I know we suffer a lot. I suffer terribly. Not one thing has helped me. I don't get a break from pain ever. It's been really horrible for a long, long time, but I don't act like a brat simply because I'm sick so I can. 

   For one thing, I would never want my children to see me behave like that! I would feel like a hypocrite because although I believe in letting people help me, I need to be self-sufficient, too. The other thing is I would never want to take advantage of the people who truly love me and worry about me whenever the newest problem pops up.

   So, If you're in pain don't add to it buy being a pain. It never makes anything better!

The end of "The Boys From this Neighborhood"


Steve had been the one to find her in the alley that night. The boys had all run away when they heard a car coming. The third boy had been taking his turn raping her. They left her in a bleeding heap on the asphalt. Steve had been the one to take Suki to the hospital, vowing to bring the boys to justice.
                  Suki remembered how he tried to wipe the blood from her face and, how he had stayed by her side until the doctor examined her. Her father had been so grateful that Steve had stayed.
                  Seeing Suki alone of the streets at night, Steve came to her immediately. She told him about the party, the girl and the boys.
                  At Steve’s request another officer escorted her home quickly, and she felt secure knowing that he would be by to check on her later.
                  Back in her apartment, Suki listened as Steve and his partner approached the boys in the alley. The music died down. She began to feel cooler, her clothes no longer sticking to her body.
                  Suki could hear the sound of the drunken girl sobbing. In the distance as she touched her cheek where the stitches had been. That girl was lucky; the boys didn’t hurt her.
                  She heard the whistle of the eleven o’clock train. Now I can finally rest. Suki thought. They won’t be able to hurt anyone else tonight.


Friday, September 14, 2012

long time, no blog

Hello again! It's nice to be back. It has been a long time, but it wasn't spent in vain. In hindsight I find it would have been a perfect time to share what I was going through, alas, regrets just add unnecessary lines to our faces and heaviness to our hearts.

Although I felt I had nothing to share I did continue to write, even in an online course, to hone my skills and to continue to grow as a writer.

I didn't transition as well as I thought I did- from teacher to writer was easy enough, I've been waiting to be a "writer" since I was as young as I can remember! It was the transition from "regular" person to "sick" person that threw me for a loop. 

I thought I was dealing with it well, that I had a lot of positive things to say, however, I couldn't apply those positive things to myself.

I'm starting to feel like my old self again in many ways, yet my life is completely different now. We adapt- we stretch, we grow, we go on. We have to. 

I look forward to sharing my journey.

peace & love,
sunee





Wednesday, April 13, 2011

Sjogren's Syndrome

Most of the difficulties I face are due to Fibromyalgia. Severe as it may be, my autoimmune disease can be pretty bad, too.

Today my eye is swollen and feels like it's being stabbed constantly. This is due to my extremely dry eyes from Sjogren's Syndrome. I don't know how serious this problem is yet, but I decided to stop worrying and return to my positive state of mind. Taking a positive approach is often the hard road, but it's better than being a Negative Nancy just complaining all of the time.

That doesn't mean I'm not contacting my doctor(s). Taking action when there's a problem has only positive effects.

Not that I'm feeling easy and breezy about my eye. I'm not. It's completely freaking me out. But I'm talking with my family, blogging (obviously, though it's not easy seeing out of only one eye clearly) and just keeping it light as I can.

I tend to write about keeping a positive spin on life, no matter what our conditions. But, sometimes when things aren't so dandy it's good to express it. We just can't stay in negative thinking.

peace and love,
sunee